Purpose: Cost-effectiveness evaluations of interventions require health utility data. However, in medical conditions, such as aromatic L-amino acid decarboxylase (AADC) deficiency, this presents problems due to the rarity of the disease. The study aim therefore was to employ a discrete choice experiment (DCE) to generate health utilities for AADC deficiency. Link to the article
PUYOU DE POUVOURVILLE, G., SMITH, A., HANBURY, A., WHITTY, J., BEITIA ORTIZ DE ZARATE, I., HAMMES, F. and BUESCH, K. (2022). A Discrete Choice Experiment to Derive Health Utilities for Aromatic L-Amino Acid Decarboxylase (AADC) Deficiency in France. Patient Related Outcome Measures, (13), pp. 21-30.